Kaylynn had her 13th Hemangioma Laser in Irvine, CA again.    Mommy and Kaylynn went by ourselves this time.    All went well on the plane ride, we got a car and headed to the hotel that Papa Gus got for us with points.   Since Papa Gus travels frequently,  we were on the premiere level at the Marriott, which meant Kaylynn and I had access to the concierge lounge.   So my beautiful 2 year old girl and I decided to go have appetizers, milk and cookies for dinner with the business people.  

 

Kaylynn laser went really well again the next morning.  The changes from the 3 lasers  treatments with Dr. Nelson are amazing.   Dr. Nelson used 3 different types of lasers on her face this time and you can really tell the difference.    Kids in her preschool class don't even ask "what happened anymore?"    In recovery, Kaylynn, just gets pissed and tells Dr. Nelson to "GET BACK"   I love that she gets pissed at them not me.

 

Because Kaylynn has been under anesthesia so many times,  her poor body does not like it, so on the 405 in California with 6 lanes of traffic, she threw up twice.  Poor thing and finally passed out until we got to LAX airport.   Funny part of it was when with got to the rental car drop off and she heard the music playing, she starting dance and pulling the suitcase.   It was over.   

 

Next laser is Oct 9th in California.   We are not sure how many more, but the way it looks I think we are close to being done.     If we got stuck now, we would be more than happy with the results.  But you know for your child, you want perfection on a little face.  :)

 

Other news for the Kolineks,

 

Hum?   I tell you, we can keep the medical community busy.    Larry was diagnosed with Type I Diabetes, yes Larry.    We were in complete shock for a few days, but took charge and Larry is doing great and using very little insulin because of our healthy almost all veggie eating plan.   Send me good veggie recipes, with chicken or anything, I need the help.

 

I'm doing really well.   Feeling stronger and had a great 60 miles 3 Day walk.   It was amazing and I love every minute of it.  The best part this year was having my family at the cheering station and my beautiful sign they surprised me with during the walk.   Awareness is power!   I'm doing all my follow up scan, appointments now.  Whew!     November 2, 2007 will be my two year marker and scans in early December.    Moving forward!    Growing boobies for the second time in my life in Jan 2010. 

 

Reeve started Kindergarten and is doing great.    He is my healthy, strong. steady one.   I love that all we do is go to his annual check ups.     Go Reeve!     I feel for him though.   He has handled this all very well but the medical appointments just keep coming and he has to just keep understanding.   

 

Kaylynn was diagnosed with Bladder Reflux last year, we have been giving her prophylactic antibiotics every night for over a year to prevent bladder infections.    What happens is when she urinates some of the urine goes back up into the bladder and creates infections.  Well,   she got worse and now stage IV, which means it goes up to her Kidney's.  

 

After meeting with the pediatric urologist on Thursday,  we have to get more tests done since the last two comparable ultrasounds of her Kidney's show uneven growth activity.  They are now looking at possible Kidney scaring.  

 

Seriously, I say to myself.   Can't this VERY active little girl of mine just get a break from the medical world.    With my medical treatments I just do what I need to do,  I get frustrated that at any given week we can have up to 6 doctor appointments  But I understand it has to be done.   Kaylynn does not understand, she is amazing at the doctors office (different child) but she doesn't want to go anymore.  SERIOUSLY?

 

So we are having two more tests run to check her Kidney's.   We can't be on antibiotics her whole life, we can't  damage her Kidney's and then have to get Kidney transplants, so in December Kaylynn will most likely have her first cutting surgery to fix the bladder reflux.   Our poor baby girl.    

 

And get this,  my very active, climbing child, will have to be calm for 10 days during recovery.   I can't wait for the doctors and nurses at Dell Children's in Austin to figure that one out.    Here comes the Kolinek family, watch out.  :) 

UPDATE: October 5, 2009 Today we got some of the best news. Kaylynn's kidney tests came back really good. Both the left and right are the same size and functioning at good levels. No scaring has been done by the bladder reflux. The older sonogram was wrong.
SO We canceled the December surgery and get to wait a year to see if we get any improvement on the reflux. If not, we will decide on surgery again. But for now, we get to enjoy our Christmas Break and my little baby girl does not have to feel bad. I was doing the party dance in the doctors office today. My stress level went so low, that I just want to cry of joy for her.
We leave for Irvine, CA for laser Thursday. Larry and I are thinking this might be it for awhile.

 

 

 

I have to say,  we are really well.  We are getting back to normal most days and having fun.   Larry and I are going to our first UT Game together this weekend in a long time.  Something we really love,  thank you McClellan's for helping us get tickets.  

 

See,  I told you,   we "Just Keep Swimming, Just Keep Swimming"